Resources                                                          Publications

• Renal EOL Care Drug Guidelines              •   Recently Published Articles

• Advance Care Planning                              •   Advance Care Planning

• Patient Information                                     •   Symptoms and Management

• Nutrition                                                       •   End of Life Care

• Education and Presentations                     •   Palliative Care in Renal Medicine

• RSC Symposium

• Hub Resources

Resources

Renal End of Life Care Drug Guidelines

These guidelines are in draft form only and are a work in progress to assist in the care of renal patients who are in the end of life phase of their care. Please contact the Palliative care team or renal consulatant if your patient has symptoms that are not managed well.

• Kidney Health Australia - An Introduction to Symptom Managment and Supportive Care (2017)
• Renal Palliative Care Referral Form (Nov 2019)
• Palliative Care Drugs in Renal Failure (2015)
• End of Life Symptom Control in ESKD (Flowcharts) ( 2015)
• Opioid Conversion for Pain Management (2018)

Table 1: Extract from the Opioid Conversion for Palliative Pain Management in Opioid-Tolerant Adults  Clinic Business Rule SGH-TSH CLIN100 (2018)

Extract from the Opioid Conversion for Palliative Pain Management in Opioid-Tolerant Adults  Clinic Business Rule SGH-TSH CLIN100 (2018)

Advance Care Plan

• Advance Care Plan Template (New Feb 2020)
• Tough conversation worth having - SMH article (2012)
• Values Clarification worksheet (2015)

Patient Information

• Supportive Care Clinic Information (May 2019)
• Dialysis or Not (2009)
• Kidney Health Australia: Supportive Care Website (2019)

Nutrition

• Taste changes in advanced CKD (Aug 2017)
• Healthy Eating for Kidney Disease (June 2017)
• Guide to eating well with Kidney Disease (Jun2017)
• Diet tips when eating is difficult
• Constipation Management in Chronic Kidney Disease (October 2016)
• Low Potassium diet (brief overview) (April 2018)
• Publications:
  • Nutrition in Renal Supportive Care: Patient-driven and flexible (2017)
  • Nutrition in renal supportive care: Is it time to bend the rules? (2017)

HUB Resources

• St George Hospital Referral Pathway Information
• St George Hospital Renal Supportive Care Referral Pathway
• CKD in Elderly Patients Managed without Dialysis (2015)
• Developing and Sustaining a RSC Service for people with ESKD (2011)
• Executive Summary of KDIGO Controversies Conference of Supportive Care in CKD (2015)
• How world religions formulate their ethical decisions on withdrawing treatment and determining death (2015)
• The Renal Memorial Service (2013)
• Renal Palliative Care Reader  (2012)
• RSC Guidelines (2013)
• RSC: Position Statement (2013)

Education and Presentations

• Palliative Care and Renal Medicine
• Care of the dying patient with ESKD
• Concept of Renal Supportive Care and setting up the service

For more information please contact the St George Renal Department:

elizabeth.josland@health.nsw.gov.au or alison.smyth@health.nsw.gov.au

Publications

Publication list

• CKD in elderly patients managed without dialysis
• Four Plus Forty-four hours to modify, Theirs to Enjoy
• CONSIDER - a discrete choice experiment
• Renal Palliative Care in Australia: Time to engage - Nephrology editorial
• Palliative Care Reader by Dr Frank Brennan 4.6MB (Updated 30.4.2012)
• The Australian Centre for Health Law Research is delighted to announce the launch of its new website End of Life Law in Australia at http://www.end-of-life.qut.edu.au.

Recently Published Articles

• Supportive Care: Integration of patient- centred kidney care to manage symptoms and geriatric syndromes (2016)
• Supportive Care: Time to change our prognostic tools and their uses in CKD (2016)
• Supportive Care: Communication Strategies to improve cultural competence in shared decision making (2016)
• Supportive Care: Meeting the needs of patients with Advanced CKD (2016)
• Supportive Care: Comprehensive conservative care in end stage kidney disease (2016)
• Supportive Care: Economic considerations in Advanced kidney disease (2016)

Advance Care Planning

• Advance Care Directives and Dialysis Discontinuation (1997)
• Improving Advance Care Planning (2001)
• Family Based Advance Care Planning (1999)
• Facilitated Advance Care Planning: Patient Experience (2008)
• Why is it difficult discussing advance care directives with chronic renal patients (1996)
• Psychological considerations in dialysis discontinuation (1993)
• NSW Guidelines for Deactivation of Implantable Cardioverter Defibrillators at the End of Life (2014)
• Conflict Resolution in End of LIfe Settings (CRELS) (2010)

Symptoms and Management

• Treatment of Restless Legs Syndrome (2008)
• Pruritus associated with CKD (2007)
• Uraemic Pruritis (2009)
• Pain Management in CKD (2009)

End of Life Care

• Oncology and Hope (2010)
• Truth telling and dying patients (1993)

Palliative Care in Renal Medicine

• Epidemiology of renal palliative care (2007)
• Renal palliative care initiative (2003)
• Outcomes of CPR in dialysis patients (1992)